Hip Surveillance in Children with Cerebral Palsy: Why It Matters and What You Need to Know
"Discover the importance of hip surveillance programs for children with cerebral palsy, addressing practice variations and improving quality of care."
Cerebral palsy (CP) encompasses a group of conditions affecting movement and posture due to non-progressive disturbances in the developing brain. A significant concern for children with CP is the risk of hip displacement, which can lead to pain, impaired mobility, and reduced quality of life. Studies show that approximately 35% of children with CP experience hip displacement.
Hip surveillance programs are designed to detect progressive hip displacement early, enabling timely referral for orthopedic assessment and management. Early intervention can prevent hip dislocation and avoid the need for more extensive salvage surgery later on. While these programs have been adopted in various countries, a standardized approach is lacking in the United States.
A 2016 survey of the Pediatric Orthopaedic Society of North America (POSNA) aimed to understand current orthopedic practices regarding hip surveillance in children with CP, identify areas of variation, and explore the potential for developing national guidelines.
Understanding Hip Surveillance for Cerebral Palsy
The POSNA survey revealed several key insights. A majority of respondents (90%) agreed that a dislocated hip in a child with CP is painful and should be prevented through hip surveillance and surgical treatment. An overwhelming 93% indicated they would support a national surveillance program if one were available. Critical elements for a hip surveillance program were identified as age (79%), Gross Motor Function Classification System (GMFCS) level (81%), and migration percentage (MP) (78%).
- Age and GMFCS Level: When to start the first screening.
- Migration Percentage (MP): A key indicator of hip displacement.
- Radiographic Views: Standardized methods for taking radiographs.
Moving Forward: Standardizing Hip Surveillance
The POSNA survey underscores the need for a standardized approach to hip surveillance in children with CP in the United States. While there is agreement on the importance of early detection and intervention, significant practice variations exist. The American Academy of Cerebral Palsy and Developmental Medicine (AACPDM), with input from POSNA members, is developing a clinical care pathway for hip surveillance. This initiative aims to synthesize current surveillance programs into a unified guideline, ultimately improving the quality and value of care for patients and families.