Empowered patient managing peritoneal dialysis at home.

Take Control of Your Health: A Guide to Self-Care in Peritoneal Dialysis

"Empowering patients through self-care strategies can significantly improve quality of life and treatment outcomes. Learn how to enhance your agency in peritoneal dialysis."


Chronic kidney disease (CKD) poses significant challenges, impacting not only the patient's health but also their overall quality of life and family dynamics. The economic burden on healthcare systems is substantial, making effective self-care strategies crucial. By empowering patients to take an active role in their treatment, we can mitigate these effects, improving outcomes and reducing the strain on healthcare resources.

Peritoneal dialysis (PD) offers a unique opportunity for patients to manage their treatment from the comfort of their homes. This independence, however, requires a strong foundation in self-care. Patients must be equipped with the knowledge and skills necessary to perform dialysis exchanges, monitor their health, and adhere to medication schedules. Strengthening self-care agency is key to maximizing the benefits of PD, allowing individuals to maintain their lifestyles and overall well-being.

This article delves into the critical aspects of self-care in PD, exploring strategies to enhance patient autonomy and improve treatment adherence. Inspired by the research of Ana Julia Carrillo Algarra, we provide a comprehensive guide to understanding and implementing effective self-care practices, ultimately empowering patients to take control of their health journey.

AI Search Multiple angles on this topic

Home-Based Care and Self-Management

Peritoneal dialysis (PD) is often performed at home and requires an abdominal catheter; dialysis care teams provide training and support for patients doing PD at home. A study aimed at understanding self-management ability and influencing factors surveyed 507 PD patients at three tertiary hospitals from June 2024 to February 2025. The supplied study summary describes its methods but does not report findings or a broader prevalence estimate.

Assessing Readiness for Home PD

PD is a home-based therapy that patients or their caregivers must perform, and one study set out to develop a practical way to assess patients’ ability to perform PD and identify barriers to self-care. A 2024 scoping review found that home-dialysis candidacy assessment involves clinical, psychosocial, and logistical factors. The review noted that further research is needed to validate and refine existing tools and establish standardized screening criteria.

From Early Records to Modern PD

The first known recorded reference to the peritoneal cavity appears in the Ebers papyrus, dated to 1550 BC. The term “peritoneum” derives from the Greek *peritonaion*, meaning “to stretch around.” These historical accounts trace the subject from early recognition of the peritoneum to the development of peritoneal dialysis.

Understanding Self-Care in Peritoneal Dialysis: What Does It Really Mean?

Empowered patient managing peritoneal dialysis at home.

Self-care in the context of peritoneal dialysis goes beyond simply performing the technical aspects of the treatment. It encompasses a holistic approach that includes actively participating in one's health management, making informed decisions, and adhering to prescribed regimens. Dorothea Orem's self-care deficit theory defines self-care as actions individuals undertake to maintain their well-being, health, and life. This concept is particularly relevant in PD, where patients are responsible for administering their treatment and managing their daily care.

Carrillo's research highlights six key categories of self-care in PD:

  • Maintaining and improving physical fitness.
  • Optimizing nutritional status.
  • Engaging in recreational activities as a form of self-care.
  • Protecting and maintaining arteriovenous fistulas.
  • Adhering to pharmacological therapies.
  • Applying experiential knowledge and self-constructed practices.
AI Search Multiple angles on this topic

Limits of Retraining Evidence

In a randomized controlled trial, neither technique inspection nor oral education significantly changed the risk of all-cause peritonitis compared with usual care, although technique inspection showed a trend toward reducing non-enteric PD-related peritonitis. A separate randomized trial of retraining for older patients said large-scale multicenter trials are warranted to examine effectiveness. It also identified the timing and long-term effects of retraining as questions for further study.

Effective self-care not only improves clinical outcomes but also enhances a patient's sense of control, reducing anxiety and promoting a more positive outlook. It fosters a collaborative relationship between patients and healthcare providers, ensuring that treatment plans are tailored to individual needs and preferences.

Empowering Patients Through Enhanced Self-Care Strategies

In conclusion, fostering self-care agency in peritoneal dialysis patients is essential for improving treatment outcomes, quality of life, and overall well-being. Healthcare professionals play a crucial role in designing and implementing strategies that empower patients to take control of their health. By addressing individual needs, promoting education, and fostering a collaborative relationship, we can help patients thrive while managing their condition effectively. Continued research and innovation in self-care practices will further enhance the lives of those undergoing peritoneal dialysis.

AI Search Multiple angles on this topic

Self-Care Ability and Modality Choice

Self-management among people with diabetic kidney disease receiving home PD remains a challenge, according to a study that used the Theory of Planned Behavior to examine patients’ self-management behaviors. A separate randomized controlled trial investigated whether preemptively assessing self-care ability could change PD uptake. Its summary notes that uncertainty about performing PD tasks may deter patients from choosing the modality, but does not provide the trial’s results.

Technology and Unmet Needs

A perspective on the future of PD describes global uptake as low and identifies concerns about patient safety, complications, and the absence of continuous medical oversight as limiting factors. A 2025 review describes emerging technologies intended to address challenges in PD training, delivery, and complication identification. It also reports that currently used solutions are high-dextrose, concentrated acidic solutions that can increase glucose absorption and contribute to peritoneal membrane degradation through pseudohypoxia and related mechanisms.

Care-Partner and Employment Barriers

A 2025 article on PD in the United States says it is plausible that many patients in an older age group transitioned to hemodialysis because of growing barriers to self-care dialysis. The barriers it identifies include increasing comorbidities and changes in the availability or capacity of care partners. Separately, a study summary proposes including business support for employing PD patients in Environmental, Social, and Governance (ESG) evaluation systems.

Connecting Home Monitoring to Care Records

A multicenter, real-world implementation study evaluated an interoperable digital ecosystem connecting the Sharesource remote patient monitoring platform with the Versia electronic medical record system. It used a before-and-after design among patients receiving automated PD at home. The study summary identifies a potential limitation of remote monitoring: patient-generated data may remain disconnected from electronic medical records, but it does not report the implementation’s outcomes.

PBL training scores compared with traditional training

  • 91.19 vs 84.33Basic PD knowledge scores were 91.19 in the PBL group versus 84.33 in the traditional group.[1]
  • 71.47 vs 61.19Self-management scores were 71.47 versus 61.19, respectively.[1]

How training comparisons differ across PD outcomes

Frequent home retraining involved more training time than the comparison group over the study period, and its authors linked that difference to fewer PD-related infections. In contrast, an older-patient retraining trial reported infection rates of 0.11 versus 0.13 episodes per patient-year, while a separate standardized-training comparison recorded more patients with infection in the standardized-training group than in usual care. These results do not point to a uniform infection benefit across training approaches and comparisons.[2] [3] [4]

What remains uncertain about PD self-care

  • Would the score differences between PBL and traditional training also appear in longer-term clinical outcomes, given the need for higher-quality intervention trials with adequate follow-up?[1] [5]
  • How much does the amount and timing of retraining influence infection outcomes across different patient groups and training formats?[2] [3] [4] [6]

Terms used in PD training evidence

CAPD
Continuous ambulatory peritoneal dialysis[1]

About this Article -

Written with AI assistance from published research, and reviewed by the Mystum team. See our About page for more information.

Everything You Need To Know

1

What does self-care really mean in the context of peritoneal dialysis?

Self-care in peritoneal dialysis (PD) involves much more than just performing the dialysis exchanges. It's about actively managing your health, making informed decisions about your treatment, and sticking to the prescribed plan. Dorothea Orem's self-care deficit theory is very relevant here, because it emphasizes that individuals must take actions to maintain their health and well-being. In PD, where patients manage their own treatment daily, self-care is essential for a positive outcome.

2

Why is self-care so important for people undergoing peritoneal dialysis?

Self-care is critical in peritoneal dialysis because it significantly improves both treatment outcomes and your overall quality of life. When patients actively participate in their care, they often experience a greater sense of control, reduced anxiety, and a more positive outlook. Effective self-care also leads to better adherence to treatment plans, improved clinical results, and a stronger, more collaborative relationship with healthcare providers.

3

What are the key aspects of self-care that I should focus on when managing my peritoneal dialysis?

Carrillo's research identifies six key categories of self-care within peritoneal dialysis. These include: (1) maintaining and improving physical fitness, which contributes to overall well-being; (2) optimizing nutritional status, crucial for managing fluid balance and overall health; (3) engaging in recreational activities, which helps with mental and emotional well-being; (4) protecting and maintaining arteriovenous fistulas, which are vital for dialysis access; (5) adhering to pharmacological therapies, which ensures medication schedules are followed; and (6) applying experiential knowledge and self-constructed practices, allowing patients to tailor their care based on personal experience. These categories are all vital for the patient to ensure a positive outcome in their health journey

4

How can healthcare professionals help me to become more empowered in my peritoneal dialysis self-care?

Healthcare professionals empower patients by designing and implementing self-care strategies that address their individual needs. Education plays a significant role, providing patients with the knowledge and skills necessary to manage their treatment effectively. Fostering a collaborative relationship between patients and healthcare providers ensures that treatment plans are tailored to individual needs and preferences, ultimately leading to better outcomes and improved well-being.

5

How does chronic kidney disease relate to the need for self-care in peritoneal dialysis?

Chronic Kidney Disease (CKD) presents considerable hurdles by impacting a person's overall well-being along with affecting family members. The financial strain on healthcare systems is substantial, which makes having effective self-care strategies essential. By empowering patients so they can take an active role in their treatment, it can reduce these effects, improve outcomes, and diminish the burden on healthcare resources.

Newsletter Subscribe

Subscribe to get the latest articles and insights directly in your inbox.